Australia’s National Youth Cancer Consumer Forum
Consumer Advisory Group Presentation at Australia’s National Youth Cancer Consumer Forum Last weekend three of our Consumer Advisory Group members – Megan, Mikyla and Mackenzie – travelled to Sydney to present, work with, and be a part of Australia’s National Youth Cancer Consumer Forum. During the weekend, the trio presented a one hour workshop on […]
Pharmac update
Pharmac Update: Rule 8.1b On Friday Pharmac announced that they will retain rule 8.1b of the Pharmaceutical Schedule. Rule 8.1b is a special mechanism which allows doctors in the paediatric oncology centers to access clinical trials and prescribe international best practice therapies that would not otherwise be available in New Zealand. The AYA Network’s submission was […]
A farewell to Heidi Watson – National Clinical Lead
A farewell to Heidi Watson – National Clinical Lead It is with a heavy heart that we announce the resignation of our National Clinical Lead – Heidi Watson. Heidi has led the Network since its inception and has been the driving force in connecting and energising the sector to improve cancer care for young people […]
National Travel Assistance (NTA) Letter – A call for an urgent update
National Travel Assistance LetterA call for an urgent update Our Adolescent and Young Adult (AYA) Consumer Advisory Group are calling for an urgent update on when changes will occur to the National Travel Assistance (NTA) Scheme. The NTA scheme was established in 2005 to provide financial aid for people who need to travel away from […]
New resource He Rā Ki Tua – Life After Cancer
New resource – He Rā Ki Tua – Life After Cancer We are excited to announce our latest resource ‘He Rā Ki Tua – Life After Cancer’. This collaborative resource covers everything AYA age 16+ need to know about transitioning from treatment – back to life. It has 110 pages of helpful tips and resources including […]
Updated Fertility Preservation Guidelines March 2023
Updated Fertility Preservation Guidelines for People with Cancer in Aotearoa – March 2023 Updated Guidelines March 2023: Fertility Preservation for people with cancer in Aotearoa Excitingly Te Aho o Te Kahu have nationally endorsed the newly updated Fertility Preservation for People with Cancer in Aotearoa Guidelines. This is part of a wider project supported by […]
AYA Consumer Advisory Group Weekend Workshop 2022!
Consumer Advisory Group Weekend Workshop 2022 Wow what a weekend! This October our AYA Consumer Advisory Group came together kanohi ki te kanohi after nearly 3-years for our annual weekend workshop. This weekend was filled with so much fun, laughter, whakawhanaunga, mahi, awhi, tautoko and aroha. We have such a cool group on board. Our […]
Key Worker Annual Face to Face Workshop 2022
AYA Key Workers Face to Face Workshop 2022 After nearly 3-years of Covid restrictions, the AYA Key Workers and AYA Cancer Network teams were finally reunited kanohi ki te kanohi for what was an amazing 2-day workshop. This was a time to really ask the question… “what does the future of AYA cancer care look […]
Let’s talk fertility with Tanwen
Let’s talk fertility with Tanwen In this video we talk all things fertility with Tanwen – Consumer Advisory Group member. Tanwen takes us through her experience with fertility preservation during her cancer journey. Throughout we have put prompts for health providers for good fertility preservation practice. We hope you enjoy! Watch here…
AYA Cancer Webinar Series
AYA Cancer Webinar Series We are excited to announce the release of Adolescent and Young Adult (AYA) webinars specific to health care professionals. Whether you work with young people every day, only see a young person in clinic every now and then or simply want a refresher for topics that young rangatahi will come across […]