AYA Cancer Incidence and Survival

Kirsten Ballantine, our Data Projects Lead has produced a webinar to provide a little more detail about the main findings from the AYA Cancer Incidence and Survival in Aotearoa 2008-2017.

Projects, Reports and Publications

AYA Cancer Research projects currently or recently being undertaken in AYA Cancer Care in New Zealand

The results of the 2018 Patient Experience Survey completed by 200 young people in New Zealand are now available. Click here to read the report Whakarongo Mai: Listen to Me

– A prospective national study investigating timelines to diagnosis for New Zealand Adolescent and Young Adult (AYA) cancer patients Contact Person Tristan Pettit – tristan.pettit@cdhb.health.nz

– Australasian Oncofertility Registry Study: Monitoring referral patterns and the uptake, quality and complications of fertility preservation strategies in Australia and New Zealand. New Zealand patients from 0-25 years are eligible for the registry components of this study.
Contact Person Dr Tristan Pettit – tristan.pettit@cdhb.health.nz

– Delivered dose intensity of curative-intent chemotherapy for Adolescent and Young Adult (AYA) osteosarcoma patients in Auckland, New Zealand – A retrospective audit.” Contact Person Dr George Laking – GeorgeL@adhb.govt.nz

Past Projects

– University of Otago Summer Studentships: Nov 2017 – Feb 2018. “Diagnostic Delay in AYA Lymphoma and Brain Tumour patients – Does it exist and what are the contributing factors?” Collaboration between Canterbury and Southern DHBs.
Contact Person: Dr Tristan Pettit – tristan.pettit@cdhb.health.nz

– University of Otago Summer Stundentship: Nov 2016 – Feb 2017. “Diagnostic Delay in AYA Sarcoma patients – Does it exist and what are the contributing factors?” Collaboration between Canterbury and Southern DHBs.
Contact Person: Dr Tristan Pettit – tristan.pettit@cdhb.health.nz

– The Sexual Health Concerns and Sexual Health Education Needs of Adolescents with Cancer. 2013
Contact Person: Louise Sue – Louise.Sue@cdhb.health.nz

– What factors are associated with successful adherence to oral treatment for CML?. A literature review. Contact Person: Simone McMillan – SMcMillan@adhb.govt.nz

– Does the metaphorical conversation ‘Te Awa’ assist young people traverse their cancer journey? Contact Person: Ellyn Proffit – Ellyn.Proffit@waikatodhb.health.nz

– Does massage therapy improve symptom management for children and adolescents with cancer. Contact Person:Tracey Vincent – TraceyV@adhb.govt.nz

Celebrating published New Zealand reviewed journal articles:

2019. Pettit T, Sue L, Waugh V, et al. 2019. An age stratified analysis of the access to care continuum across three tumor groups: are there delays for AYA? Journal of Adolescent Young Adult Oncology.

View Journal Article

2018. Ballantine K, Utley V, Watson H, Sullivan M, Spearing R. 2018. The burden of cancer in 25–29 year olds in New Zealand: a case for a wider adolescent and young adult age range? The New Zealand Medical Journal.

View Journal Article

2018. Watson H, Moss, R. 2018. Adolescent and young adults with cancer in New Zealand. The New Zealand Medical Journal.

View Journal Article

2017. Ballantine K, Watson H, Macfarlane S, et al. 2017. Small Numbers, Big Challenges: Adolescent and Young Adult Cancer Incidence and Survival in New Zealand. Journal of Adolescent and Young Adult Oncology.

View Journal Article

2013. Yallop K, McDowell H, Koziol-McLain J, et al. 2013. Self-reported psychosocial wellbeing of adolescent childhood cancer survivors. European Journal of Oncology Nursing.

View Journal Article