Survivorship/Life After Treatment

"Cancer doesn't end at remission. Even though it's been 8 years it's still so fresh and raw and I don't think those feelings are ever going to go away. As a result of my cancer, health services will always be a big part of my life. The fear of cancer returning is also always going to be there."
AYA patient

AYA Cancer Network Resource

We are excited to announce our latest resource ‘He Rā Ki Tua – Life After Cancer’.

We would like to acknowledge and thank our incredible project manager – Laverne Robinson for writing this resource, our AYA Consumer Advisory Group for their ideas, review and feedback on each section, Helen from Erupt Design for her beautiful design work and the rest of the Network team, stakeholders and AYA Key Workers for their support in the making of this resource. 

A lot of work and intention has gone in to the making of this resource and we hope it provides our rangatahi with the support, guidance and tools they need to navigate their next journey upon finishing treatment. 


End of Treatment Summary

The End of Treatment Summary keeps a record of young peoples’ medical history during cancer treatment. AYA can then share it with their GP, employer or school, and keep a copy for other times a medical history is required. 

To download this End of Treatment Summary form:

  1. Right click on the form and select “Save link as…”
  2. Save on your computer
  3. Right click the form once its saved and open in Adobe Reader or Adobe Acrobat
  4. Now fill in the form and print

If you receive this error message when trying to download the form, do not worry. This will show as the form cannot be viewed as an online PDF. It will only work in Adobe Reader or Adobe Acrobat software. Adobe Reader is free to download if you do not have it.

Printable Resources

Guidelines/ Research

Children’s Oncology Group | Long Term Follow-Up Guidelines

ASCO (US) | Guidelines on Survivorship Care

Recommendations for cardiomyopathy surveillance for survivors of childhood cancer: A report from the International Late Effects of Childhood Cancer Guideline Harmonization Group

View Abstract and Article

Recommendations for breast cancer surveillance for female survivors of childhood, adolescent and young adult cancer chest radiation: A report from the International Late Effects of Childhood Cancer Guideline Harmonization Group

View abstract and article

Web Resources

New Zealand long term follow-up service for paediatric patients


Support Directory

1. The Children’s Oncology Group

The Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers (COG LTFU Guidelines) are a resource for healthcare professionals who provide ongoing care to survivors of paediatric malignancies. The screening recommendations in these guidelines are appropriate for asymptomatic survivors of childhood, adolescent, or young adult cancer presenting for routine exposure-based medical follow-up.

2. Peter MacCullum Cancer Centre

The ACSC aims to provide timely and relevant information for health professionals on important issues related to cancer survivorship.


The American Society of Clinical Oncology is the world’s leading professional organisation for physicians and oncology professionals caring for people with cancer.

Heidi Watson

The Clinical Leader is responsible for providing clinical leadership and national oversight of the network .

Heidi is a passionate and experienced health professional with a strong clinical, education and leadership background. Her enthusiasm for, and commitment to youth health has focused on improving the outcomes of youth with cancer and chronic health conditions. Previously, Heidi held the position of AYA Cancer Nurse Specialist for Auckland District Health Board. Alongside her AYA clinical leadership role she holds a youth health academic position at the University of Auckland.