Survivorship/ Life After Treatment

"Cancer doesn't end at remission. Even though it's been 8 years it's still so fresh and raw and I don't think those feelings are ever going to go away. As a result ofmy cancer, health services will always be a big part of my life. The fear of cancer returning is also always going to be there."
AYA patient

Printable Resources

Guidelines/ Research

Children’s Oncology Group | Long Term Follow-Up Guidelines

ASCO (US) | Guidelines on Survivorship Care

Recommendations for cardiomyopathy surveillance for survivors of childhood cancer: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group

View Abstract and Article

Recommendations for breast cancer surveillance for female survivors of childhood, adolescent and young adult cancer chest radiation: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group

View abstract and article

Web Resources

New Zealand long term follow-up service for paediatric patients

LEAP | www.kidshealth.org.nz

Support Directory

1. The Children’s Oncology Group

The Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers (COG LTFU Guidelines) are a resource for healthcare professionals who provide ongoing care to survivors of paediatric malignancies. The screening recommendations in these guidelines are appropriate for asymptomatic survivors of childhood, adolescent, or young adult cancer presenting for routine exposure-based medical follow-up.

2. Peter MacCullum Cancer Centre

The ACSC aims to provide timely and relevant information for health professionals on important issues related to cancer survivorship.

3. Asco

The American Society of Clinical Oncology is the world’s leading professional organisation for physicians and oncology professionals caring for people with cancer.

Tools