Palliative Care

"I was a young girl preparing the real possibility of dying. I wanted to still have the opportunity to live life"

AYA patient

Printable Resources

When your siblings cancer can't be cured

When your child isn't going to get better

When your brother or sister dies

Supporting your friend when a loved one has died

Living with the death of your parent or sibling from cancer

Living without your child

Facing Death Booklet

Support Directory

For a full list of NZ hospices | www.hospice.org.nz

National Paediatric palliative care service | https://starship.org.nz/health-professionals/paediatric-palliative-care/

Skylight offers both individual and family counselling for children, young people, family/whānau and friends who are experiencing grief, loss and Trauma. |https://www.skylight.org.nz/get-support/counselling

Make a Wish NZ grants wishes and experiences for children and young people with life threatening conditions up to 18 years of age. www.makeawish.org.nz/

Guidelines/ Research

Starship | Paediatric Palliative Care Clinical Guidelines

Together for Short Lives | Standards framework for children’s palliative care

Together for Short Lives | Making a difference for young adult patients

Together for Short Lives | A guide to children’s palliative care: fourth edition

Web Resources

Skylight | skylight.org.nz/

Together for Short Lives (UK) | togetherforshortlives.org.uk/

Paediatric Palliative Care (Australia) Links to resources for professionals, caregivers and teachers https://paediatricpalliativecare.org.au/

Te Hokinga a Wairua | Website for individuals, partners or whānau of an adult (including AYAs) at the end of their life.
Contains practical information about what to do after a bereavement | https://endoflife.services.govt.nz/welcome

Knowledge Hub | For resources including online training and development in working with adults (including young adults) | https://knowledgehub.hospice.org.nz/

Paediatric Clinical Care Network in NZ | The Paediatric Palliative Care Clinical Network leads and provides clinical oversight of the implementation of the Guidance for Integrated Paediatric Palliative Care Services in New Zealand.
It provides advice on service and treatment issues to the Paediatric Society of New Zealand and Ministry of Health through the Palliative Care Advisory Group: https://starship.org.nz/health-professionals/paediatric-palliative-care-clinical-network/