Survivorship/Life After Treatment

"Cancer doesn't end at remission. Even though it's been 8 years it's still so fresh and raw and I don't think those feelings are ever going to go away. As a result of my cancer, health services will always be a big part of my life. The fear of cancer returning is also always going to be there."
AYA patient

Finishing treatment means you will probably have questions about what happens next and how your diagnosis and treatment may affect your future.
We have created an ‘end of treatment folder’ that lists some of these questions for you to discuss with your AYA Keyworker or healthcare team and to keep your follow-up care plan in.
If you do not have a copy of this please ask your AYA Keyworker for one.

Below are several fact sheets and booklets with information related to after treatment care and worries.
Please contact your AYA Keyworker if you need more information. Not all of the provided information will be specific to New Zealand.

Printable Resources

Support Directory

The Children’s Oncology Group

The Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers (COG LTFU Guidelines) are a resource for healthcare professionals who provide ongoing care to survivors of paediatric malignancies. The screening recommendations in these guidelines are appropriate for asymptomatic survivors of childhood, adolescent, or young adult cancer presenting for routine exposure-based medical follow-up.

Peter MacCullum Cancer Centre

The ACSC aims to provide timely and relevant information for health professionals on important issues related to cancer survivorship.


The American Society of Clinical Oncology is the world’s leading professional organisation for physicians and oncology professionals caring for people with cancer.

Heidi Watson

The Clinical Leader is responsible for providing clinical leadership and national oversight of the network .

Heidi is a passionate and experienced health professional with a strong clinical, education and leadership background. Her enthusiasm for, and commitment to youth health has focused on improving the outcomes of youth with cancer and chronic health conditions. Previously, Heidi held the position of AYA Cancer Nurse Specialist for Auckland District Health Board. Alongside her AYA clinical leadership role she holds a youth health academic position at the University of Auckland.