AYA Consumer Advisory Group Passion Projects

Haere mai, welcome to the hub of our AYA Consumer Advisory Group. In this space you will find a variety of different supports and creations by our consumers, for you. Whether you are a fellow young person going through cancer, a whānau member or loved one who knows someone with cancer, or a health provider. Our consumers have created something for you.

For the young person with cancer

Social media links
Motivational Support Cards
Alex's Top Tips for finding your appetite in hospital

For the caregiver, whānau, friend

Q&A support guide - From one rangatahi, whānau and friends to another

For the health provider

Want to get into the minds of young people and have more understanding in how to work with them? Check out this guide made by them.

Other

Guide for reintegration back into school - For education providers

Kāhore taku toa i te toa takitahi, he toa takitini

We cannot succeed without the support of those around us

20+ rangatahi with lived experience of cancer

AYA Consumer Advisory Group

Leaders and advocates for improving AYA cancer care in Aotearoa

Giving back to current and future rangatahi with cancer in Aotearoa

Aroha mai, aroha atu

Quotes from our young people

“My favorite plant store! The customer service is amazing. they always help me find the perfect plant and provide watering instructions!”
Eesa Haines
“Whenever I want to buy someone a special gift, this is the shop I come to! Their plants are beautiful and they always have a huge selection!”
Tina Talley

For you, the young person with cancer

Recommendations

Our consumers have shared a list of different social media and online platform things that they found comforting or useful during their cancer journeys. These are both cancer and non-cancer related.

YOUTUBE

Amanda Rach Lee – Creative Account

Link to YouTube video

How to tie a headscarf

Link to YouTube video

For you, the whānau member or friend

For you, the health provider

Heidi Watson

The Clinical Leader is responsible for providing clinical leadership and national oversight of the network .

Heidi is a passionate and experienced health professional with a strong clinical, education and leadership background. Her enthusiasm for, and commitment to youth health has focused on improving the outcomes of youth with cancer and chronic health conditions. Previously, Heidi held the position of AYA Cancer Nurse Specialist for Auckland District Health Board. Alongside her AYA clinical leadership role she holds a youth health academic position at the University of Auckland.