Financial / accommodation & practical support

"The barriers we faced were financial, that was a big one. Getting the support that we needed individually but also as a couple as well. Emotionally it would break me down, to the point where I wouldn't know what to do"
AYA patient's
partner

Support Directory

Personal costs often increase for young people when they begin treatment; this can be due to needing to take time out from work, hospital car parking, petrol, away-from-home accommodation and potentially for some young people, childcare costs.

Below is a list of services and resources that may be useful in supporting young people.

Work and Income NZ

There are a number of ways that Work and Income may be able to financially assist young people. These may include providing benefit payments, emergency grants, travel and accommodation cost assistance when related to on-going health care visits, as well as carer benefits and allowances to meet on-going health care and associated costs.

www.workandincome.govt.nz/eligibility/health-and-disability/index.html

National Travel Assistance

If young people need to travel long distances, or travel frequently for health care then they may be eligible for help with expenses under the National Travel Assistance Scheme. These expenses may include travel, accommodation and support person’s costs.
health.govt.nz/new-zealand-health-system/claims-provider-payments-and-entitlements/national-travel-assistance

Kiwi Saver – Significant Financial Hardship / Serious Illness

If young people can provide evidence that they are suffering significant financial hardship and/or serious illness, they may be able to withdraw some of their Kiwi Saver savings. For further information contact their Kiwi saver provider.
www.kiwisaver.govt.nz/already/get-money/early/hardship/

Community Services Card

The community services card can help young people with the costs of health care. If they qualify they will pay less on some health services like GP visits and prescriptions.
www.workandincome.govt.nz/products/a-z-benefits/community-services-card.html or 0800 999 999

Pharmaceutical Subsidy Card

Young people can get this card from their pharmacist if they have collected 20 subsidised prescription items in a year. If they are under 18 years this number can be combined with their family. All further prescriptions that are fully subsidised for the rest of the year will be free. The year starts 1st February.

To get the card young people should be instructed to talk with their regular pharmacist who will hopefully be keeping their information electronically.

www.health.govt.nz/your-health/conditions-and-treatments/treatments-and-surgery/medications/prescription-subsidy-scheme

Carer Support

If a young person is undergoing treatment and requires a full time carer (can be a family member) there is a subsidy to assist the unpaid, fulltime carer to take a break from caring for the young person. Please refer the carer to a social worker or GP for more information and to assess their eligibility.

www.health.govt.nz/system/files/documents/pages/how-to-claim-carer-support-09.pdf

Make a Wish

Make a Wish grants wishes and experiences for children and young people with life threatening conditions up to 18 years of age. A diagnosis of cancer qualifies young people to participate.

www.makeawish.org.nz/

St John Ambulance Supporter Scheme

By paying a small annual subscription a young person qualifies for free ambulance cover if needed.

www.stjohn.org.nz/Support-us/Join-our-Supporter-Scheme/

Support Services

The below non-government organisations can provide varying level of support to young people and their whānau through sourcing practical support, providing accommodation options, transport to and from treatment and in some circumstances financial assistance. ·

Cancer Society | cancernz.org.nz (Accommodation and assistance getting to treatment)

Leukaemia and Blood Cancer NZ (LBC) | www.leukaemia.org.nz/support/patient-family-support/

Breast Foundation Cancer NZ | shockingpink.org.nz/what-we-do/financial-assistance/

CanTeen | www.canteen.org.nz/what-we-do/

Child Cancer | www.childcancer.org.nz/get-support/family-support/

Printable Resources

Please find below the New Zealand specific resources. These are available to be downloaded and printed. To be mailed high resolution colour copies please contact heidi@adhb.govt.nz or ask for copies from your local AYA Keyworker.

Guidelines/ Research

Web Resources

Tools